HI,
I have just finished with 16 months (yes 16 months) of peg-combo
for hep c, I did respond at first and was viral free for 3
months, then my viral load spiked up to 1.1 million on the
treatment and was coming back down.
My doctor had lowered my ribavirin in half because of the
sides, and then we discovered that the hepatitis network,
Priority pharmacy was miss-dosaging my weekly shots and I
was missing about 30% of that.
I did not tolerate the meds well, I had helacious headaches
and finally had to take narcotics 2 or 3 days a week, I was
on two antidepressants and went down to 94lbs from a healthy
125#, I lost all of my hair and in hindsight I feel like the
medication was killing me softly. I am supposed to be
gaining weight and taking a break to build my hemoglobin's
up from the eight they were at even on procrit, and my platelets
were very low as well.
Now I have been off the meds for a month and I am desperate
to find another way other than going back on the meds in 6
months. I was searching the internet and found you.
I am taking a liver cleanse vitamin, juicing allot of carrots
and beets, acidophilus to get everything in my body back in
order as well as an immune builder. I am now afraid
that I will over do it on those without someone knowing for
sure what is safe for me to take and what is not. I
am going to Seattle for two weeks in July and my brother said
they are right by Bayster University and maybe I could go
there.
I see on the article about you that you have or had c...........
I would appreciate any information that you can give me. I
unfortunately had to go on disability during this period and
am very tight on living expenses along with having to pay
for my own medical insurance at 400.00 a month. I would greatly
appreciate any information that you can supply to me to assist
in getting thru this journey alive.
Thanks very much, I look forward to hearing from you.
S.
Hi S:
The best thing I can tell you is do not use interferon's!!!
If they do not work the first time and they usually do not,
they will not work the second time. Doctors just keep
on prescribing them as long as patients are stupid enough
to use them. They do not work and doctors know that
the hep C virus mutates with each replication to develop a
resistance to interferon.
If I were you I would do what I did because people who do
have the best results. Forget you doctor as far as hepatitis
C treatment and read my books, read my web site. There
you will find about 3000 pages of good info. Read the
CBER report on the front page and see what schering has to
say about its products. Read my message board, read
everything you can.
Please do not use interferon's again. If you answered
my phone for a few days you would know what a horrible thing
that modern medicine is doing to people. We really should
have done regime change here in the FDA and the AMA instead
of Iraq.
I am here for any questions.
In good health
Lloyd
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