Hello,
Lloyd,
I
was diagnosed with hep C in 92. I have gone thru two
treatments; one interferon alone and then a couple years
later the Rebetron. Neither was successful, and I
guess that is no surprise to you. I have mild fatigue,
but usually feel pretty good. I try to take care of
myself. I
have run across your site, and my eyes are really opening
about this disease. I have used Thymosin in the past
-ordered it from Life Extension. It was just so darn
expensive. I am on SSI.
My
question: There are so many products at your site. Should
I start with a few, and if so which, or should I try to
find a way to take all of them? I have gotten really
weary concerning this disease. In the past month my
legs and feet have swelled with pitting edema. I am
on Medicaid here in TN (called TNCare). Its
a mess. All the Dr's are over booked and overcrowded.
My own Dr. of over 2 years couldn't or wouldn't work me
in. I called July 1 and was given a July 25 appointment.
After 2 emergency room visits they found I did have a UTI,
but told me to go to my Primary Care Dr. ( I told them
I was TRYING) I changed Dr's just to be able to
get some kind of treatment. There were no blood tests
run at the emergency room. I finally last week
wound up with a nurse practitioner who refused to run any
diagnostic tests or profiles, but told me she was sure the
swelling was liver related - she may be right. In
any case I can't get in to see a Gastroenterologist until
Aug. 21. I am still swelling, and don't know what
my problem is. Have you ever heard of swelling legs
and feet associated with Hep? I am really scared. I
am not trying to get you to diagnose. And I really
do need to know which supplements to start with as I can
afford very few right now...........
Please
do post my e-mail at your site. I know awareness is
Key, and I believe that the people will have to get together,
much as AIDS patients have had to do to get effective treatment
that won't harm them more. I got the distinct feeling
that Hep C is a disease that all the Dr's I saw just didn't
want to deal with. The sudden swelling that I have
had can be a hepato-renal syndrome that needs treatment
- not in seven weeks, but soon! (August 21, when I
finally get to see a gastroenterologist, it will be 7-8
weeks from the onset of my swelling) I have
no faith in the medical community as a whole, but I do believe
there are still some practtioners out there who are sympathetic,
and helpful, and supportive. A few years ago there
were more than there are now, in my opinion. Its very
scary when your own Dr. (of almost three years) doesn't
work you in when you have a problem, and you are left to
go to emergency rooms, whose personnel simply tell you to
go to your Dr. I have been very depressed, but I have
a 12 yr old to raise alone, and I can't just give up.
I won't give up.
Thanks,
Lloyd for your comments. I hope to be able to tell
you soon what great results I have had.
Thanks
for what you are doing,
Bless
you and your work,
E. G.
