Lloyd,
I've always thought "earthy crunchy" people were
a little strange, but not any more. I'm talking about my aunt.
She's a schoolteacher, very intelligent, and knows more about
health than I do, but I'm learning quickly. She turned me on
to milk thistle. I then stumbled upon your web sight, and I'm
glad I did.
I was diagnosed with hepatitis C in June 1990. Since then
I've been seen by at least 7 doctors, have had three liver
biopsies, waited for my hepatitis condition to go from acute
to chronic (doctors wouldn't prescribe Interferon treatments
until my condition advanced to the chronic stage). I've been
on every Interferon protocol possible - from standard therapy
to higher dose, longer duration; double blinded, placebo
controlled; combination therapy (first with thymosin, then
with ribavirin), and have been a non- responder to it all.
I have recently, within the last two years, graduated from
being seen by Medical Doctors to now being seen by a Physician
Assistant (PA). Could things possibly get better? She told me
about a new Pegasus Interferon and how I would be an eligible
candidate for this crap (since I have been a non-responder to
every other Interferon therapy - HELLO!!!!!) when they get it,
a year and a half from now. Now she wants me to come in every
6 months and have blood drawn until they get this
"NEW" Interferon. In her office, on the wall is a
list of herbs that are good to take, others which should be
avoided. I noticed the list but never thought too much of it.
I then learned about milk thistle from my aunt. Milk thistle
was on the list of good herbs to take, some others were reishi,
licorice, and dandelion. I asked her one day, after she told
me there wasn't anything else I could do until they offered
Pegasus, about the list and milk thistle. I thought she would
say milk thistle would help protect the liver, but she didn't.
She tried to discourage me saying, whatever they mix in with
milk thistle capsules (fillers) could be harmful to the liver.
She ended with a positive note, milk thistle might lower your
liver functions, but it wouldn't get rid of the virus. Like
lowering my liver functions isn't a good thing?
I started taking milk thistle capsules in October 2000. I
told the PA, I wanted to take milk thistle for three months to
see if my liver enzymes would come down. She said she would
schedule a follow-up appointment in three months to have blood
drawn, and to have a nice day. I asked "Shouldn't I have
blood drawn today so I would have something to compare the
results with?" She thought that might be a good idea (oh
yeah, she's on her way of becoming a great doctor). After
three months my liver functions did come down, but my viral
load at this time could not be determined (interesting).
On 05/01/2000,HCV RNA PCR, QUANT (WH) 14.23 million
UI/ml. In January 2001, I began your protocol (except
for the frozen thymus, couldn't afford it at the time). I had
blood drawn June 2001, the result being HVC RNA PCR, QUANT (WH)
366,000 UI/ml.
I can't believe what Client 6, from your book had to say
about the viral load test, "depending how much one
believes in that test". Well I'll tell you what, I
BELIEVE! After 10 years of not responding
to any type of Interferon therapy, ya damn right I believe! It's
still hard to believe it came down that much in 6 months. Oh,
just for the record, I haven't heard anything from my PA as of
yet. Do you think I will? I can hear you laughing!
I just have a few questions I'm hoping you can answer:
- I asked my PA, " What does my viral load count have
to get to, to get rid of this virus (trick question,
no?)?" She said, "Zero." Is she blowing
smoke up my butt?
- Will the viral load ever get to zero?
- Is "NOT DETECTABLE" the same as in remission?
- How did you know you were Hep C Free - viral load,
biopsy?
- What was your viral load when you first determined you
were Hep C Free? What is your viral load today, if this is
the determinant?
- The viral load of Client 9, in your book, went down one
million four hundred and fifty thousand in 8 months. How
did you figure that out?
- Client 8, in you book, says, "In February 2000 he
reported that his viral load was less than 3.3 Hepatitis C
non-detected." How is this determined, once again,
viral load count, biopsy?
- I was unaware that you did radio shows. Do you have any
future speaking engagements scheduled for this summer? If
so, I would like to get a copy of the list of show times.
If I do some how become Hep C Free, I'd like to celebrate
by flying out to Cali, shaking your hand and thanking you in
person, and then maybe throwing down a couple of ice cold 16
ounce artichoke shakes with you!
Thanks, and talk to you later,
P.
Hi Pete
Answers.
- There are two common viral load tests. The quantitative
test shows non-detected if your viral load is below or
less than 2000. The qualitative test says non-detected if
your viral load is less than 600.
- The viral load can get to 0. Whether it will or not is
unknown.
- The doctors I have dealt with associate non-detected
with being in remission.
- I was pronounced hepatitis free by the hepatitis c
research doctor at UCLA. The method he used was blood
tests.
- The test the doctor showed me was a viral load test
which said "0.00" viral load, hepatitis c
non-detected. My last test was in august 2000. It simply
said "negative". This was a hepatitis panel
which included A, B, C.
- I took the first viral load number taken before he
started and deducted the last one from the viral load test
he gave me at that time. I have these blood tests on file.
- This was a viral load test.
- I do radio and some TV. I get these shows via an agent.
They seem to come in clusters. I will post them as they
come.
I am scheduled to speak at the cancer convention at the
Sheraton Universal on September 1. I haven't written my speech
yet, and am not sure if about it. I am not a professional
speaker, but I am working on it.
I would be honored to throw down some artichoke shakes with
you!
Note:
About 8 months ago I received several calls from people who
had just finished trials for Peg Intron. As a group, they were
the sickest people I have heard from, average viral load 3
times higher than when they started.
The interferon in peg intron is exactly the same as the
intron A interferon.
Lloyd