Hello Hope all is going well with you. I just wanted to
take a few minutes to thank you for your kindness and all your
wisdom on hepatitis C. I sure hope you realize how much youíre
appreciated for all your time and effort you give to help
others like their families and myself with this disease.
You have definitely touched my life, I had pretty much done
just what the doctors did, I was giving up, I was tired of
fighting, and failing everything I tried.
To make matters worse I have "Polycithemia". It's
a blood problem where your "hemadicrit", your red
blood cells replicate at an extremely fast rate and you have
to have phlebotomies all the time, it's when they remove your
blood, like when you use to donate blood. They have to make
sure I don't clout somewhere; it can get kind of dangerous if
it goes up to high. Every time I get a headache I have to go
to Nevada Cancer Center to be drained. When you go every other
week it can be time-consuming and depressing spending all your
So doctors say it came from Hep-C, some say it came from
interferon I took 2 1/2 months six years ago that literally
almost killed me off since my doctors never checked my blood
when they put me on it for ten weeks.
He was a real winner, needless to say he is no longer
working in Nevada, I wasn't the only patient he forgot about,
but I was one of the lucky ones, I'm still here.
Now I have five specialists and none of them agree about
anything. Now they say I have something called Porferia. They
say it can go hand-in-hand with C. it affects the spleen.
They don't treat me very nice at all, they raise their
voice about how I'm going to die in front of other people and
totally humiliate me because I refuse a four-year treatment of
interferon which I previously failed six years ago.
This last April 2001 I went for my second biopsy. The
doctors stuck me in my rib the first time. The second time he
got the needle stuck in my diaphragm, my whole right side of
my body was paralyzed for five hours. That's what can happen
when they mess up. I was in so much pain, and so scared I
haven't been back to any doctor but my internal medicine
doctors and thatís just for the test results. You actually
become your own doctor, that's pretty sad. The good news is
I've been on your protocol for 2 1/2 months and I haven't had
one phlebotomy. My hemadicrit went down for the first time
ever. My viral load went down and my AST is normal. And no
more headaches. I can't express how thankful I am for your
book. I feel pretty damn good these days for a 39-year-old
female with fourth stage liver disease.
I am trying to stay positive and look towards my future.
One month before I read your book I was done, I was in bed and
really fed up after the liver biopsy disaster.
After reading your book I wasn't so alone with my situation
anymore. After everything you went through, I knew it wasn't
time to give up. You made it through and so will I!
So thank you Lloyd from the bottom of my heart.
K. F. N.
PS every three or four months I'll fax you test results
good or bad, but I know they'll be better and better every
Give my best to Aunika!
Blood Tests on file.