Lloyd,
It has been awhile since I last contacted you
and I just wanted to update you on my hubby B. ... He had
all his scans and ultrasounds re-done since it has been a little
over 2 years. He has been on your program (somewhat
aggressive) for about a year now and his tests are improving.
His liver functions are perfect now, we were
worried for a while when they really started shooting up there,
but down to normal now!
At one time all his scans were showing fatty
liver, inflammation and dense fibroses... well we got his
results last week and it has NO inflammation, NO fatty liver, and
has decreased in density... with a comment of "suggest re-testing
due to dramatic changes" Yes we had it all done again...
SAME RESULTS!!!
We are trying to get as much done as possible now because I am
now disable due to a spinal injury I got last year after installing
an air conditioning unit myself... I carried it up 3 flights of
stairs and installed myself.. yes I am crazy!!
Bill was also having such a horrible time when he was on the "recommended
treatment", he would fall because of the pain and swelling
in his legs, they would go numb and down he went a number of times,
the peg combo would raise his temp up to 104, he would be getting
up and trying to walk around and (he didn't even remember this)
he would bang into walls and fall... it was just heart wrenching
to see the man I love dying in front of me, and yes I do feel that
the peg combo was killing him. Every time he fell there
I was picking a 220lb man off the floor, amazing what adrenaline
can make a person be able to do!
So I have been out of work since August, I am appealing my STD,
they are trying to say it was pre-existing, well all my Doc's are
helping me, they all wrote letters and sent in more info to show
it is not, but unfortunately I still have no income, just B's SSD
that can barley cover food. B. and I are forgoing eating
so that my 2 kids can eat. As of Dec 19th I have been
paying 100% for my health insurance... over $1300 a month and as
of Feb 19th I go on COBRA. Bill will be able to go on Medicare
part B and United Health as of May 1st, 2004, so for now we are
pretty much S O L. I am trying to find an insurance company
to purchase private insurance, my ex hubby is putting the kids on
his... sadly I had to go to a attny. to get him to do this, but
it is in the works.
Are you aware of any insurance companies that offer health (including
RX benefits) insurance, or any web sites that may help my search?
When I search there is so many links that it would take
me a year to just narrow a few down.
I have gone to Doc's about my back and they have told me my vertebra
are cracking vertically from L1 through L5,S1 down to my tail bone.
Half the discs are blown the rest bulging. I know that
the M in the TLM would help me so much, but there is no way I can
afford it, not now, and the future is not looking too good. My
left leg is a dead leg, the nerves are pinched off so I use a walker
and drag the dead leg along... by the way I'm 33 years old.
The Doc's tell me that surgery would paralyze me, there is nothing
to attach hardware to. Sometimes I think paralysis sounds
good! I am on Oxycontin, Duragesic patches, muscle relaxants,
Xanax... the whole bit... but the pain is still there all day and
all night 24/7/365.
I think I told you about my needlestick
in May 2003... I was a Phlebotomist (I drew blood from patients
in a hospital)... my liver functions are going up, I have sever
edema in my right leg, pressure like feeling under my right rib
cage. My ultrasound showed that my liver is inflamed and dense... I
am awaiting my bloodwork. My doctor is skipping the yes or
no and going right to the PCR viral load... he wants numbers not
yes or no. I am not going to lie, I am scared... the
patient I got the needlestick from died 3 days later from Hep C
while on the table having a liver transplant.
Also in 2002 my daughter had 3 surgeries for a vascular malformation
in her left arm, the blood vessels grow into a ball like a rubberband
ball, her ulnar nerve is running right through the middle and is
causing her to lose feeling in that arm and hand. If they
go in surgically she would lose too much blood too fast and possibly
die. They used sclerotherapy... injecting ethanol into the
blood vessels, eventually the blood clots and the ethanol dissolves
the clot and it is absorbed into the body. It is very painful and
recovery is about 6 months. As the ethanol does its job it
starts to move up to the surface of the skin and the skin blisters
and bleeds. It is just horrible to see her go through this. She
is 11 now (I have twins, boy & girl), she wants to try to wait
till school is over, she's a straight A student, because she is
graduating from elem. school.
As you can see things are not going well. If you have any
info about health insurance that would be great. I still have
about a 2 month supply of your alt. meds and I am pray that something
happens within the next 2 months, because I would hate to see him
stop your program due to money. He has come so far because
of your program. I do believe that he would be dead by now
if not for you. You have given me hope that I might actually
grow old with him and have a full life. I pray that I can
get on your program as well, my kids need me, and I don't want to
die. I can live with being paralyzed.... but if I do have
Hep C and I can't treat it I know the outcome.
I hope all is well with you. I will continue to spread your
info around. At our primary doctors office one of the office
girls just found out her hubby has Hep C. I let her borrow
your book and urged her to not let them talk him into the peg combo,
and to just read the book and go to your site... there is an alternative,
and it wont kill you!!!! My hubby is proof!! Once
again, THANK YOU, you and all the rest are in my prayers.
Sincerely,
T. W.
Florida
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